The following has nothing to do with sewing and not really much with me either. But another family´s horrible problem has touched me so much that I have decided to spread the plead for help on this site as well.
I am sorry if anyone finds it inapproriate somehow. I am ok with this and if you don´t feel like helping out, it is ok, this is up to everyone themselves!
Since the story is not mine, I will simply lay out a few facts:
- there is a 3 month old Estonian girl diagnosed with quite a rare genetic disorder Spinal Muscular Atrophy
- until recently there was no cure and the affected children lived up to 2 years until their breathing stopped, because the disease disturbs muscle development
- the medication Zolgensma that really cures the disease (gene therapy) is the most expensive in the world, with a price tag over 2 million USD (yes that´s right)
- over a million has already been donated in Estonia
If you want to read more, go visit: https://helpannabel.eu/en/, and please consider helping!
The following is copied from the Facebook post of Tartu University Hospital Children’s Foundation that has already given 400 000 euros from their reserves and has opened phone lines and accounts for the same specific purpose (there is also information towards the end of the text for those kind and generous people who would like to donate from abroad!):
ONE MILLION! Thank you so much good people!
A little 3 month old Annabel, whose life depends on the extremely expensive medicine, is gone into the hearts of many people. Today, by midday, the amount of money donated by kind people for Annabels’ treatment was reached to 1, 014 254 million euros.
The Lastefonds’ donation account has received up to 221 167,74 euros, together with 400 000 euros, which came from reserves. Donation account HelpAnnabel, created by Annabels’ parents, has received 392 575 euros total to cover the treatment. The biggest donation, Lastefonds’ account received, was a whole of 22 thousand euros. Phone donation amounts, we hope to get by tomorrow.
Many great businesses have offered their help, by donating money for treatment and also, by offering their time and abilities. For example, thanks to Linna Ekraanid, the information for helping Annabel is able to be forwarded to people everywhere. Thank you so much for your help!
Donating to companies through Lastefond, is tax-free. According to law, the donated amount with income tax credit is up to 10% of yearly income, or till 3% with social tax of taxed amount, in the choice of etrepreneuer. Tartu Ülikooli Kliinikumi Lastefond is sending the data to Maksu- ja Tolliamet by the 1 of February, in the following year.
In response to, what happens with the donations, when little Annabel will not get together the needed amount, Lastefond assures, that the remaining money will go to cover other sick children treatments. This is how our charity organization is functioned for almost 20 years, which is also why, thanks to our regular donaters, the amount of 400 000 from reserves can be added to the cure for treatment.
Today, the essential medical documents of Annabels treatment will be sent to United States to wait for the final confirmation. Thank you, good people, for helping to save the little girls life!
To maintain the donations of the treatment that will save Annabel’s life, You can donate through the bank accounts of the SA Tartu University Hospital Children Foundation (SA Tartu Ülikooli Kliinikumi Lastefond) indicating in the explanation „Annabel“:
Swedbank IBAN EE682200221015828742
SEB IBAN EE261010220014910011
Luminor IBAN EE791700017000285384
LHV IBAN EE527700771000610813
Requisites for non-Estonian bank transfer:
Bank: Swedbank, address: Liivalaia 8, Tallinn
PayPal payment should be directed to firstname.lastname@example.org with description ‘’Annabel’’.
Let´s hope for the best! Thanks for reading!